Sunday, April 3, 2011
My four year old granddaughter Sophie has Cystic Fibrosis.. you might remember the little girls on America's Got Talent Christy and Allie. After much thought and prayer I did this video to raise awareness of the disease. I have to tell you it was one of the hardest things I have had to do.. very emotional.. I love my granddaughter with all my heart and soul... seeing her suffer is a difficult thing for me.. I sometimes wonder if I will ever come to terms with it. I really don't think I will. Right now there is no cure. CF is a fatal lung disease but it also affects the digestive system and can cause many other problems. It takes hours a day doing breathing treatments for her to try to stay well. Frequent hospitalizations from lung infections are not uncommon. A simple cold can lead to severe complication and long hospitalizations. She take at least 20 pills a day to help her to digest food. She uses 4 different breathing medicines when taking breathing treatments for 30-40 minutes two times a day. Will you take the time to watch this video? It is not easy to watch. The music is beautiful.. it is a song written and sang by Matt Scales who had Cystic Fibrosis. Matt died at the age of 28 in 2007. The words in the song echo the struggles and hope by all who suffer from this horrible disease.
God bless you on this Sunday.. if you have heatlhy children and grandchidren say and extra prayer of thanks.
Here is the video, I do hope you will take time to watch it.. it is what I am about.